Getting to Know Our Social Health Network Members

Getting to Know Our Social Health Network Members

The new Social Wellbeing Network (SHN) supplies place to join with other individual leaders. In August, we posted numerous prompts to the Social Health and fitness Network Facebook site to act as springboards for knowing just one a further and forming connections. Group associates experienced numerous insights to share!

How summertime warmth has an effect on them

A person of the queries we asked was about surviving the summer heat: “We’re acquiring in no way-ending summertime below on the east coast of the United States. Does warmth have an effect on your well being ailment?” Overwhelmingly, the response was “yes!”

“Yes, quite significantly, primarily for my Lupus. Far too scorching can trigger a flare, so I have to continue to be awesome.”

“Yes!!! My mast cell disorder doesn’t let for excellent temp control. The heat will increase my serious dehydration and impacts the wear time of my ostomy bag.”

“Heat only impacts CLL (serious lymphocytic leukemia) clients if they are already encountering ‘night sweats,’ which some have. Insert on top rated of that sizzling flashes that some of us also have – and it’s like possessing a microwave on the inside!”

“I essentially do better in hotter weather. The humidity is what helps make points demanding for me.”

Their health and fitness journey in 3 phrases

A different August prompt asked about local community members’ wellbeing journeys: “If you could explain your overall health journey in 3 words and phrases, what would they be?” Numerous text came up consistently.


Lots of respondents selected “empowering” as one of their phrases. They have observed toughness in their health and fitness journey. Sharing and foremost from ailment provides them a voice and a new objective.

“Unusual – disabling – empowering!”

“Realizations, hope, empowerment.”

“Empowering, standpoint, motivating.”

“Thriving, Empowerment, Hope.”

“Devastated, Prayer, Empowered.”


A further word a several men and women outlined was “humbling.” Dwelling with long-term sickness strips away points that most people today take for granted. Well being, uncomplicated motion, and undertaking daily tasks may be hard. But these troubles direct to lessons that folks under no circumstances envisioned.

“Unexpected, humbling, strengthening.”

“Definitely humbling.”

“A teaching moment.”


The topic of how hard it is to reside with chronic health issues also arose. People today exclusively pointed to ache, panic, and uncertainty.

“Confusing, unpleasant, mysterious.”

In the key, Dull, can be DEPRESSING, occasionally Horrifying.”

“Learning, living, uncertainty.”

Their Connexion 2022 encounters

August was also the thirty day period of the once-a-year Connexion conference. This is a time to acquire, learn from one another, and listen to from Health and fitness Union management. 1 Facebook prompt requested about experiences at Connexion: “Thank you so a great deal for attending day 2 of Connexion!! What has been your preferred session so considerably? Have you uncovered everything new?”


Lots of responses shared an appreciation for networking alternatives, particularly the prospect to community with other client leaders who are element of the SHN!

“I’m really making the most of meeting other patient leaders, but session-wise I liked understanding nowadays about networking.”

“The networking session was astounding. I just can’t wait to fulfill some new good friends tomorrow when we get to community all over again.”

“I specially liked meeting other affected individual leaders in the networking session.”

Healthcare gaslighting

One more popular session was a person on healthcare gaslighting. Being aware of that other folks are also dismissed and disregarded by medical practitioners felt affirming to numerous individuals.

“So far . . . surely today’s gaslighting session.”

“The gaslighting panel was great!”

“Today’s clinical gaslighting panel. The discussion blew my brain in a superior way.”

Thank you

We are grateful to individuals who engaged with these prompts! Thank you for remaining right here and for all the operate you do!